All.Can Patient Survey

Purpose The aim of the survey was to obtain patients’ perspectives on where they felt they encountered inefficiency in their care, looking at the entire care continuum as well as the broader impact of cancer on their lives. The survey questionnaire made explicit that we defined inefficiency as resources that are not focused on what matters to patients. Survey conduct and oversight The design and conduct of the survey was led by Quality Health (quality-health.co.uk ), a specialist health and social care survey organisation working with public, private and voluntary sector organisations to understand and improve patients’ experience of their care and treatment. The All.Can international research and evidence working group provided close input and validation for all phases of the survey and analysis. The survey was conducted internationally, with adapted versions in 10 countries ( Australia , Belgium , Canada , France , Italy , Poland , Spain , Sweden , the United Kingdom and the United States ). Survey development and patient interviews The questions included in the survey were developed based on key themes that emerged from an international literature review and five exploratory pre-survey patient interviews. Iterative versions of the survey were revised based on input from the All.Can international research and evidence working group and other professional stakeholders where appropriate. Country-specific versions of the survey were produced in relevant languages for each country and comprised both common questions and a maximum of five questions specific to the country. All surveys were developed with input from national All.Can initiatives (where they existed) and validated by patient representatives in each country. Additionally, an international ‘generic’ version of the survey was available in English, French, German and Spanish. All versions of the survey were reviewed by the All.Can international research and evidence working group to ensure consistency between the different country versions. The survey asked respondents whether they would be willing to take part in a post‑survey interview to provide more insights. These interviews were conducted in all participating countries except France, Spain and the United States (as there were no volunteers in those countries). Some of these interviews have been featured as patient stories throughout this report. About this survey 11 Patient insights on cancer care: opportunities for improving efficiency