All.Can Patient Survey

30 • Respondents reported that too much information being given at once was sometimes overwhelming, and they would have preferred to receive relevant information at appropriate points along the entire care pathway. • Almost half of respondents ( 47% ) did not feel sufficiently involved in deciding which treatment option was best for them. • Nearly two in five respondents ( 39% ) felt they had inadequate support to deal with ongoing symptoms and side effects. • Close to a third of respondents ( 31% ) felt that they lacked adequate support for dealing with pain. • More than a third of respondents ( 35% ) felt inadequately informed about how to recognise whether their cancer might be returning or getting worse. • 41% of respondents were not given information at the hospital about available peer-support groups. • Gaps in information and support were more prevalent among people with more advanced cancers. Information, support and shared decision-making Key findings ’The disconnect between the language my haematologist uses and common language has been frustrating.’ Respondent from Canada ’I don’t want more information, but better information.’ Respondent from the United States 2