All.Can Patient Survey

16. All.Can. 2017. Towards sustainable cancer care: Reducing inefficiencies, improving outcomes. London: All.Can 17. Cancer Research UK. 2018. Why is early diagnosis important? [Updated 26/06/18]. Available from: https://www.cancerresearchuk.org/about-cancer/ cancer-symptoms/why-is-early-diagnosis-important [Accessed 10/02/19] 18. World Health Organization. 2018. Guide to Cancer Early Diagnosis. Geneva: WHO 19. Richards MA, Westcombe AM, Love SB, et al. 1999. Influence of delay on survival in patients with breast cancer: a systematic review. The Lancet 353(9159): 1119-26 20. Birtwistle Mike, Alexandra E. 2014. Saving lives, averting costs - An analysis of the financial implications of achieving earlier diagnosis of colorectal, lung and ovarian cancer. London: Cancer Research UK 21. Husson O, Mols F, van de Poll-Franse LV. 2011. The relation between information provision and health-related quality of life, anxiety and depression among cancer survivors: a systematic review. Ann Oncol 22(4): 761-72 22. Jefford M, Tattersall MHN. 2002. Informing and involving cancer patients in their own care. The Lancet Oncology 3(10): 629-37 23. Treacy JT, Mayer DK. 2000. Perspectives on cancer patient education. Seminars in Oncology Nursing 16(1): 47-56 24. Pieterse AH, Jager NA, Smets EM, et al. 2013. Lay understanding of common medical terminology in oncology. Psychooncology 22(5): 1186-91 25. Chapman K, Abraham C, Jenkins V, et al. 2003. Lay understanding of terms used in cancer consultations. Psycho-Oncology 12(6): 557-66 26. Epstein AS, Prigerson HG, O’Reilly EM, et al. 2016. Discussions of Life Expectancy and Changes in Illness Understanding in Patients With Advanced Cancer. J Clin Oncol 34(20): 2398-403 27. Campbell-Enns HJ, Woodgate RL, Chochinov HM. 2017. Barriers to information provision regarding breast cancer and its treatment. Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 25(10): 3209-16 28. Rutten LJF, Arora NK, Bakos AD, et al. 2005. Information needs and sources of information among cancer patients: a systematic review of research (1980– 2003). Patient Education and Counseling 57(3): 250-61 29. Tokdemir G, Kav S. 2017. The Effect of Structured Education to Patients Receiving Oral Agents for Cancer Treatment on Medication Adherence and Self-efficacy. Asia Pac J Oncol Nurs 4(4): 290-98 30. Halbach SM, Ernstmann N, Kowalski C, et al. 2016. Unmet information needs and limited health literacy in newly diagnosed breast cancer patients over the course of cancer treatment. Patient Education and Counseling 99(9): 1511-18 31. All Party Parliamentary Groups (APPG). 2014. Patient empowerment: for better quality, more sustainable health services globally. 32. European Health Parliament. 2015. Patient empowerment and centredness. Available from: http://www.healthparliament.eu/wp-content/ uploads/2017/09/EHP-papers_Patients-empowerment.pdf 59 Patient insights on cancer care: opportunities for improving efficiency

RkJQdWJsaXNoZXIy ODE0MTg=