All.Can Patient Survey

33. European Patients’ Forum (EPF). 2017. EPF Campaign on Patient Empowerment: Roadmap for Action. Available from: http://www.eu-patient. eu/globalassets/campaign-patient-empowerment/roadmap/roadmap_ patient-empowerment_-epf_2017.pdf [Accessed 10/07/19] 34. Kehl KL, Landrum MB, Arora NK, et al. 2015. Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care: Shared Decision Making in Cancer Care. JAMA Oncology 1(1): 50-58 35. Mulley A, Trimble C, Elwyn G. 2012. Patients’ preferences matter. London: The King’s Fund 36. European Society for Medical Oncology. 2010. Improving Rare Cancer Care in Europe: Recommendations on Stakeholder Actions and Public Policies. 10 37. National Cancer Survivorship Initiative (NCSI). 2013. Living with and beyond cancer: taking action to improve outcomes. London: NHS England 38. Macmillan Cancer Support. 2013. Cured but at what cost? London: Macmillan Cancer Support 39. Macmillan Cancer Support. 2014. Assessment and care planning for cancer survivors: A concise evidence review. London University of the West of Scotland 40. Cancer World. 2017. Pain! The Denial needs to end. Available from: http://cancerworld.net/cover-story/pain-the-denial-needs-to-end/ [Accessed 10/07/19] 41. Ferrell BR, Temel JS, Temin S, et al. 2017. Integration of Palliative Care Into Standard Oncology Care: American Society of Clinical Oncology Clinical Practice Guideline Update. Journal of Clinical Oncology 35(1): 96-112 42. ESMO. 2012A. Gastrointestinal stromal tumors: ESMO Clinical Practice Guidelines for diagnosis, treatment and follow-up. Ann Oncol 23 (7): vii49-55 43. Hoerger M, Greer JA, Jackson VA, et al. 2018. Defining the Elements of Early Palliative Care That Are Associated With Patient-Reported Outcomes and the Delivery of End-of-Life Care. Journal of Clinical Oncology 36(11): 1096-102 44. Temel JS, Greer JA, Muzikansky A, et al. 2010. Early palliative care for patients with metastatic non-small-cell lung cancer. New England Journal of Medicine 363(8): 733-42 45. Temel JS, Greer JA, Admane S, et al. 2011. Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of early palliative care. J Clin Oncol 29(17): 2319-26 46. Mages NL, Castro JR, Fobair P, et al. 1981. Patterns of psychosocial response to cancer: Can effective adaptation be predicted? International Journal of Radiation Oncology*Biology*Physics 7(3): 385-92 47. European Society for Medical Oncology (ESMO). 2017. Patient Guide on Survivorship. Available from: https://www.esmo.org/Patients/Patient-Guides/ Patient-Guide-on-Survivorship [Accessed 01/04/19] 48. Oliver K. 2019. Personal communication: 13/03/19 49. Breast Cancer Network Australia. 2018. State of the Nation Report. Camberwell, Victoria: BCNA 60